They tried ALL DAY to get a new blood draw and were unsuccessful until about 6pm. 12 hours from when we decided to get a 2nd draw.
The result...ammonia is down to 78. And we're thinking it is even lower than that because of the way the blood was drawn. But because it took so long to get, emergency meds were started through IV and protein was removed from her food.
They were going to put a PICC line in tomorrow (this was when we were thinking she still had high ammonia levels). But with a number like 78, we are trying to avoid it (because of the risk of infection, even though the risk is small). So the plan is to take a look at her plasma amino acids and get another ammonia draw tomorrow morning at 6am and make a decision about our next steps tomorrow afternoon.
Hoping for low ammonia levels going forward!
To answer a question: they WILL get her ammonia levels down more before she is discharged. IV meds normally bring her ammonia levels down within 12 hours (sometimes even sooner, and especially with a number like 78, probably will bring it down within a couple hours). But if she became hyperammonemic again before surgery, I don't think they'd be able to take her into surgery (but I think it would depend on how high her ammonia level was). But with ammonia levels at 78, they would certainly be able to move forward with surgery. I think the bigger thing is making sure she is HEALTHY, without any colds or viruses. Any colds, viruses, or other infections will prevent her from getting her transplant next Tuesday.
Have any other questions? Definitely let me know!
P.S. - Another lovely UCD mama posted a beautiful story on her blog: The Chosen One.