Saturday, December 11, 2010

Still in the hospital

Doesn't look like our L will come home before her transplant on Tuesday.  Seems as if she'll be transferred via ambulance on Monday to where she'll have her transplant.

We were all set to come home today, and then that picky ammonia went back up.  So to be safe, we are keeping her in the hospital so she can be stabilized and STAY stable for surgery.

Just like that, rug pulled out from under us.  I'm really trying to stay positive, but I'm feeling like debbie downer right now.  Feeling like this disease has robbed us of so much. 

All I can say is, maybe we're getting a whole lot of bad luck right now because better things are coming...that better be it!


  1. I really do hope good things are coming for you. try to stay positive!

  2. I'm sorry. Sending good thoughts for your family!

  3. Hang in there, mama. Sending lots of healthy thoughts your way!

  4. They say "it's always darkest before the dawn." The dawn is coming, just try to stay positive! Keeping you guys in our thoughts for Tuesday!

  5. Thinking of you all today. Luca is in good hands and surrounded by so many people who love her. She is one very special little girl.

  6. I have been reading your blog for awhile now and I want you to know that while I don't know you, I'll be praying for your family today and I hope everything goes smoothly and that this is the only holiday you won't get to fully enjoy at home with your family.


Leave me your thoughts!