Wednesday, February 1, 2012

Wednesday, bullet style

I go from a week like last week where I post several times, to this week, where I have not had any time to post anything.  Such is life.

Here's what we have been up to, in bullet style.

  • Friday L woke up with a fever (first time in months), and like always, it scared me.  After a long trip to and from the doctor, we learned she has another ear infection.  This is the third time, all in the left ear.  Poor thing.
  • Sunday, I cut Luca's first piece of hair.  She had this one weird piece that was longer than all the rest and always fell on her face.  It made her look like a hot mess.  So I chopped it and put it in a little baggie to keep.  (I am not sure why it is such a big deal to keep - but everyone tells me I should so I did.  Now what do I do with it??)
  • Monday we headed to Georgetown for a liver clinic appointment.  Looks like I had been underestimating how much food she is taking by mouth because little girl has gained almost 1.5 pounds in 4 weeks.  Also, at this appointment, they REMOVED HER PICC LINE!  I am sorry to put it all in caps, but it truly is something I want to scream at the top of my lungs in excitement.  We had not given Luca a bath since before transplant (that is over 13 months ago now!).  To say I was excited to be rid of that is an understatement.  Obviously, I am grateful that we had it when it was truly necessary.  But, I gave her a bath this morning and it was glorious.
  • Yesterday she had a swallow study done (you can read what it was like in these two articles:   and  ).  While she was not thrilled with the test, it was quick.  There were a few tears on her part but I am happy to report that all turned out fine and the results were exactly what we wanted to hear - that everything is perfectly normal and healthy.
  • We have been spending lots of time outdoors both yesterday and today because it has been unusually warm.  
I hope you all are having a wonderful week.  And here is a picture (blurry, yet I love her expression for some reason) from yesterday:


  1. That is such a cute picture!

  2. I dont know what to do with the hair from H's first hair cut either!! If you think of something good, let me know!



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