We came home again last night. Similar to when we first brought her home from the NICU, or when we brought her home for the first time following her transplant, I have mixed feelings.
You see, they ended up trying something different to get her bile ducts to work...they are going to ride it out without any intervention. Since they opted to do this, she has been uncomfortable, barely smiling, crying, just wanting to be held. I had them run every test just to rule out that nothing else was wrong.
But with nothing really "wrong", and the desire to see if time will heal things, we came home. Now it is just a waiting game. The great news is that Luca has been acting better. Hopefully things will heal themselves.
In the meantime, we are celebrating being home for Luca's 9th month birthday.
If we actually stay home for a bit I am planning on several posts with updates so stay tuned