Baby girl arrived on Friday, August 6th. She weighed in at 8 pounds, 6 ounces, and was 20 inches. She was alert, and absolutely beautiful (not that I'm biased or anything). I am hoping to write out her birth story very soon, but we're a little preoccupied with helping our baby girl fight.
Things have taken a turn for the worse. I realized she wasn't acting right as of last night. We were to be discharged this morning, but after expressing my concerns to the nurse, one thing led to another and our baby girl ended up in the NICU. The hospital quickly informed us that they could not handle her, and transferred her to a major teaching hospital in Baltimore.
She is currently in the NICU where they are trying to get answers. It seems that she has a very rare metabolic disorder - one that means she cannot process certain proteins. Because of her body not breaking down proteins, ammonia levels are very high in her little body and are toxic.
From here, the hospital's plan is to 1) lower the ammonia levels, 2)determine which enzyme she is genetically missing to determine which type of protein she cannot tolerate and 3) find a diet that will work so that she can thrive.
Things are very serious. The high ammonia levels can have very severe consequences. We are extremely blessed that we picked up on some early signals that something just wasn't quite right. We are also very fortunate that the hospital acted so quickly, and that she now is with a team of fantastic doctors.
Please pray to whatever or whoever you believe in. We are reaching out to anyone and everyone to please pray. We need things to go well over the next few days and for her little body to get rid of the toxins.
And here's a picture of our cutie: